IN HONOR OF THOMAS
From October 26th - 30th 100% of profits will be donated to EB Research Partnership - a nonprofit dedicated to finding a cure for Epidermolysis Bullosa.
HAND EMBROIDERED HOOPS
A few years ago, embroidery piqued my interest and pulled me in quickly. I loved the endless possibilities just a piece of fabric, hoop, needle, and thread gave me. (Though clearly I became pretty hooked on florals and snowflakes. Can you blame me?)
I used to toss my supplies in a bag, take my son somewhere to play, and sit down to stitch. Which might lead you to believe I am an actual granny, but I saw the Countess of Grantham embroider on Downton Abbey one time and she is mega sophisticated, so.
HAND EMBROIDERED CARDS
When I started learning hand embroidery and making greeting cards around the same time, my husband asked what would happen if I embroidered a greeting card. After explaining all the reasons it obviously wouldn't work.. I tried it.
I love the texture the thread gives the paper, and I love using my own two hands to make each card come to life. Greeting cards are special to me because I know from experience that if the words inside are sweet enough, a person might keep a card forever.
THOMAS
Thomas was born in June 2019 and passed away in March 2020. He loved watching colorful, blinking lights, playing with his red ball, and listening to music. He loved watching soccer with his dad, dancing with his mom, and trying to figure out what the heck his older brother was up to. He had beautiful, deep blue eyes, and was an incredibly strong person. We miss him very, very much.
EPIDERMOLYSIS BULLOSA
EB is a family of rare genetic disorders that affect the body's largest organ: the skin. Individuals with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart, blisters, and shears off leading to severe pain, disfigurement, and wounds that may never heal.
Tommy's form of EB is called Junctional Epidermolysis Bullosa Generalized Severe, and it is considered the most serious form of the disease. With JEB-GS, Thomas developed wounds all over his body, as well as inside. Blistering affected his mucous membranes, such as the lining of the mouth and digestive tract, which made it difficult to eat and digest food.
Right now there is no cure for any form of EB, but researchers are hopeful. I'm grateful for their work and for the chance to donate all proceeds to their cause.